It’s been quite a while since I’ve posted.
I guess it’s just the time between crises.
Last week was another mini crisis. My Dad injured himself
working, and had to have surgery, so I had to babysit mum for a couple of days
at my house. It’s impossible because she is really deteriorating and now Dad
does “EVERYTHING” for her. When she’s
not at home, she is really anxious and confused. I have to work, I work
casually, in a new job, I don’t have the luxury of annual leave, sick days,
family leave, any of that. I’m trying to get a permanency, so I have to accept
every shift I possibly can and be reliable. I can’t let my family problems
affect my work life at this point. I get home from work, Mum’s crying because
she doesn’t want to be alone. The next day, crying because she doesn’t want to
go into a nursing home. At 3am, I have kids coming into my room crying because
they are scared of the noises she makes in her sleep. It’s anything but ideal.
The euthanasia debate sparks hot with me and my partner. No
matter how hard I try, I just can’t seem to get him to see it my way. He
understands that I am pro euthanasia, and thinks it’s a reasonable concept. But
doesn’t seem to grasp that if you have dementia, you are out of the euthanasia
game because of the mental capacity issue, so the only way to go would be to
euthanaise yourself (or commit suicide). He can’t handle the concept of
suicide. But can’t grasp that when you lose mental capacity, you tend to get
medications forced upon you by your family or your nursing home. You don’t get a choice, and it’s hard to be
firm when you are confused and scared and lost and mentally incapable of
thinking complex thoughts and following them through.
I have been saying for years and years, well before mum was
ever diagnosed with alzheimer’s that if I ever get it, I hope I have the
courage to euthanaise myself. He finds it horrendous, and thinks that me
committing suicide would be worse than dragging my family through alzheimer’s
again. I am so adamant that I will not live through alzheimers, and he is so adamant
that I couldn’t possibly do that to my children. Even though I strongly feel
that I’d be doing myself and my family the biggest favour by not dragging them
all down with alzheimers again. I’ve been through it with my grandfather (when
I was at school), with my mum and my grandmother inlaw. I know that it’s not
what I want. I don’t want to be subdued with medications to make myself easier
to handle. I don’t want to attempt suicide and then be put on the strongest
anti-depressents and put into mental institutions. I just want to take the most
humane exit and let my family get on with their life. And then when I get this brick wall the moment
I try to talk about it, I think, I can’t even have a rational conversation
about my wishes, so I can’t even discuss it, if and when the time ever comes,
because he’d just block me, stick me in a mental hospital at risk of suicide.
So, I’d just have to run off and do it without telling
anyone and leave a letter, rather than risk being forced to not carry out my
wishes.
My position is strong on this subject, it has been for decades.
I’ve spoken about it long and hard with my mum, all through my life, up until
now, I’ve never wavered. And If my
mother had the courage to “euthanaise” herself, as much as it would hurt, I’d
understand that it’s not worse than 15 or 20 years of suffering through
alzheimers. So, I’m on my own, and I know it if I ever have to face it. I know
I can’t just fly to Switzerland and get it done professionally for a fee if
Alzheimers is a factor. I know I can’t discuss it with medical professionals
because it’s a no go zone. I know I can’t discuss it with my partner because of
his catholic base beliefs. My children, well I guess I can talk about it over
the years as a general conversation, and see how that goes, but in the end, it
would be a detailed letter left hoping that eventually the scars would be less
from my self inflicted “euthanaisia” than they would from 20 years of
alzheimers care and torture. Surely the scars I have are going to be as deep if
not deeper than the scars of a very logical, well thought out suicide.
Of course this is only if I get alzheimers, but it’s
something I have to think about, because I’ve seen mum go through it, and miss
the opportunity, I’ve seen her forced into treatment and medication and
accepting that it’s not so bad, and it’ll all be ok. It’s not ok, not ok in any
way whatsoever. Her life is miserable, plain and simple. Why would I ever
subject myself and my children to what I’ve now had to endure twice. It’s hell.
Death, as I’ve said a million times, and will likely say a million more, is the
silver lining.
People find it so impossible to discuss the concept of euthanasia
and suicide, but then they don’t have the tolerance to deal with the icky
business of keeping people alive when there is no point in life. Honestly, my
partner hasn’t been to the nursing home to visit his nanna (20 odd years with
alzheimers and now 98 years old) he hasn’t been to visit in probably 3 years.
But then he has the audacity to tell me that I can’t take matters into my own
hands if this fate ever befalls me. I’m sorry, I don’t find that
acceptable. I don’t think that anyone
should try and force life upon anyone who doesn’t want to live.
I know it probably sounds morbid, maybe anyone reading this
thinks I’m already depressed or suicidal. I’m not, I’d just rather be treated
like any good dog and put down once I reach my used by date, once my life has no quality or hope. Life is not that precious that we should
torture ourselves to placate our loved one’s fears and insecurities. Everyone lives, everyone
dies, it’s just life.
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